Hubby’s Hospitalization Day 18

My husband has been diabetic for 15 years now, and was classified as a MODY (Maturity Onset Diabetes) and DKA (Diabetic Ketoacidosis) which is a serious condition that can lead to coma.
In June 25th of this year, my husband was rushed to the hospital due to severe abdominal pain, very high fever, and continuous vomiting. It was a full 17 days of hospitalization where we have been given several diagnoses, and tons of tests to determine its cause but never really came up with a final diagnosis. We’ve been sent home since he no longer has fever and seemed physically well. 

For the past 4 months, we have been in and out of the hospital and was prescribed 3, 10, 15 days of strong antibiotics. The same symptoms re-occur after 5 to 7 days of being out of antibiotics.

In October 11th to 14th, his symptoms got worse and been unable to intake any solid nor liquid food, even water is being rejected by his body. He was in so much pain the morning of the 14th, and we have decided to go at the nearest hospital in St. Therese of Pasig. We rushed at the Emergency room, but after dextrose and a few blood tests was asked to transfer to a tertiary hospital to accommodate his condition. 

October 14th at 10:30pm when we arrived at Medical City in Ortigas as this was the closest and safest for him in terms of not catching any other infection. Lucky’s BP and Blood sugar were sky rocket, while everything else was dropping. His potassium was very low, his hemoglobin dropped, and turning gray in color. We were being admitted in the ICU. Having the idea that ICU will be very costly, and the ER doctor advising us that is will be a minimum of 40K to 100K pesos a day, my husband and I signed a waiver that we will take a normal room, even asked for a ward or semi-private which he cannot be placed in due to his current state. We took the risk, and prayed that we overcome.

The doctors requested to do an Abdominal ultrasound, and immediately followed by a CT scan when they saw my husband’s right kidney is super swollen. Results show that it has grown to X10 in size, the following day he had to undergo a surgery to have the abscess removed. The operation was successful and drained 750ml of mass.

The operation in October 16th determined that the mass or cyst from his right kidney was the same cyst that was seen from June confinement, but we were miss-diagnosed from previous hospital. This caused the mass to grow and the infection to spread, it was waiting to pop and take his life. 

October 17th to 20th, we have been observed and several tests done, which showed that the first operation was not enough to remove all the mass. Repeat CT scan was done, and it seemed that the bacteria re-accumulated. Then October 23rd, the doctor advised that a second operation will require to put a hole in his right side, through: “Ultrasound and Fluoro Guided Pigtail Insertion Right Renal Collection” which means the tube can remove the abscess by leaving around 20-30cm long after the procedure inside his Kidney. My husband also needed several blood transfusions to pick up his hemoglobin. We are not losing hope, but in fact were thankful that the root cause has been determined. 

It has been a week, and tube removed the 29th of October as it has been a great success.Our bill is now over Php 500,000.00 and my husband do not have an HMO coverage and have been passing work to other artists due to his condition. We are keeping a positive perspective through all these, and we hope to find people who can help us on his road to recovery.

Please view my husbands’ gofundme acct:

gf.me/u/dts876

Sincerely,

Wife of a Diabetic (PH)

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How’s D treating you?

Do you ever feel like you are tired of the “D”? But you know you can’t be tired because it will never leave you nor your husband.

You fight it. You fight really hard. With all your might.

I have shared in my first post that my 32 year old husband is with his D buddy since the age of 17. There are days like today when there isn’t much of nerve pain attacks, no night sweats, and we can be like we were before and can catch up on Game of Thrones. 

Oh I love days like this. It just feels a little bit more calm, and peaceful with just a 37.5 degrees temp.

We are finishing off his new antibiotics in 2 days time, and I am hoping that the bacteria has been bitten down. We are lucky that hubby’s doctor is very kind and is in constant communication with me via Viber to check on his progress.

Staying positive that his bacteria count is down and won’t need to have him re-admitted in the hospital facilities.

I hope you are staying sane.

-GV-

Mornings Like This: Night Sweats

2’o clock in the morning.

Hubby wakes me as he sat up in bed, with drenched shirt while his pillowcase, and bedding wet.

He often experiences night sweats when we are having an episode of high fever, mornings like this are a bit scary as it could also mean his sugar is dropping.

Night Sweat is typically associated with other medical conditions such as Sleep Apnoea, Menopause, Hormone Disorders,  Hypoglycaemia (low blood sugar level) in connection to Diabetes and taking insulin.

I handed him a new shirt, his 4th for the night. Checked if he got fever, thank God his temperature is normal. He is not having chills, just the sweats. We went back to bed.

4’o clock in the morning.

I woke up, sat in bed.  No night sweats, checked his body temp, and it seemed normal. I should have gotten back to sleep,  but I didn’t. Checked my ipad,  opened my candy crush (anyone else still playing this?) I didn’t want to go back to day one on bonuses or boosters. Clearly,  I just wanted a quick entertainment.

After a few minutes,  I started reading my daily devotions.  I am comforted by Jeremiah 29:11

For I know the plans I have for you,” declares the Lord , “plans to prosper you and not to harm you, plans to give you hope and a future.

We may be facing Diabetes, but HE is a sovereign God and already knows the outcome of our situation. Hubby and I keeps faith, hoping, and trusting that HIS will be done.

-GV-

Photo Credits to Unsplash. com/@Sveninho

I’m a Wife of a Diabetic

There is no cure for diabetes, this condition is no foreign to me,  as my mom died of its complications.

For three years now,  I have been married to a very talented, artistic, hard working, wonderful, smart, generous, kind hearted man, and he is diabetic.  Some might say: “ohh, that’s not long enough”, but you know what’s amazing is I have been with my husband for 9 years and 11 months now. 

Hubby is only 32, and was diagnosed when he was 17. He had an open eye surgery in 2014 to remove 99.9% of the blood floaters and membranes,  left eye was classified as legally blind,  and constantly have nerve pain or neuropathy. His sugar often plays the Up and Down game which is just part of its weekly activity to say “Hi, I’m Diabetes – glad to meet you!” even though they have been together longer than us.

Over the past 12 months,  we have been hospitalized thrice, and one of his admission last June-July, 2017 lasted for 17 days. It has just been a month since he was discharged from hospital,  yet we are still having episodes of high fever, vomiting, and chills. 

I am writing this blog to share with wives, loved ones, family like myself, about living our life with a rare kind of diabetis. Yes, he isn’t Type 1. We always thought it was Type 2. But as magical as it is, hubby falls in the rare type of diabetes,  too rare his blood is submitted for further study. 

Lets go through this journey together,  because I know it’s not easy, but keep faith,  stay positive, through HIM we can overcome. -GV-